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Posts Tagged ‘advocacy’

 

This is what we should be seeing in shop windows… Real people. Click on the following link to watch a video that speaks for advocacy in a difference way:

Because who is perfect?

 

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On a morning stroll, we came across this house and its owner's boat which obviously seems to be living up to it's name… 'For Keeps'. The scene and all it's collection of 'stuff' everywhere seemed to echo a sober heartache of past memories.

There was a time when individuals with Autism were neglected and 'overgrown' stereotypes trapped them in a socially isolated world. Well, times have changed and continue to change. Research has been conducted in Europe where a specific medication has shown potential in 'aiding' individuals with Autism to be more social. This might be a drug that will literally be a positive 'For Keeps' opportunity. Click on the link below to read more about this fascinating research:

Research on 'Social' Drug

 

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My Mother-in-Law has just returned from Kenya. She is a occupational therapist on the Isle of Wight, England and yearly she goes to a developing country with Wheels for the World to bring used wheelchairs from the UK to people who need them. The stories she shares are so beautifully heart warming I wanted to share her story of her last trip with you. She highlights in her talk about the cultural discrimination people with physical disabilities face in Kenya. Her talk is only ten minutes long but worth every listening moment! Click on the link below to hear her story:

http://www.stpaulsbarton.co.uk/

 

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The other day, I was driving through the rural city of Aldergrove, British Columbia and I drove pass the Bates Hotel. It made me take a second look. It was a movie set for the new Psycho Movie with Sir Anthony Hopkins, Helen Mirren and Scarlett Johansson. It's the famous crime scene!

Which brings me to the new study about ADHD, crime and medication. The study seem to suggest that individuals with ADHD with pass criminal activity once on medication lowered their criminal activity. To read more click on the link below…

http://www.bbc.co.uk/news/health-20414822

 

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Currently, I’m reading a fantastic book called Too Loud, Too Bright, Too Fast, Too Tight by Sharon Heller. This book is a great resource for those who suffer from Sensory Defensiveness which can be a debilitating disorder and affects approximately 15% of the population. Time Magazine discusses this important book in a recent article ‘Too Loud, Too Bright, Too Fast‘. So when you think things might be too loud, too bright, too fast or too tight… Life might be giving you a taste on what a Sensory Defensive Disorder feels like.

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How Art can express things in our heart when we are speechless!

There is a wonderful program called Art Therapy that allows individuals to express themselves through mediums of Art. When I was working in England I had the opportunity to talk to an Art Therapist. It was transforming and gave me a new perspective into the importance of Art. To read more on this fabulous expression check out the follow link:

http://artinhand.org/

 

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I saw this old play pony in a playground the other day. It was a classic little beauty but needed so much tender loving care. Seems like some children I work with need that kind of care too. They are stuck. Not going anywhere.

Well, I came across an Australian educational psychologist blog which I found inspirational and exciting. Maybe the little ponies in our lives might start to move with a little bit of inspiration from our Australian colleague.

http://www.schoolpsychologyblog.com/

 

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As a mom of two little boys I have signed up for the BabyCenter emails which have been informative from teething to eating to socializing. Yesterday, I received the Preschooler Bulletin on ‘9 red flags to watch for; Signs of a Developmental Delay; ADHD: When to get your child evaluated; What exactly is a learning disability?’. All these statements get any parent’s heart beating and then the mind boggling thoughts flood in… Well maybe?

My thoughts are take time if you are concerned about your child. Time to talk to others ranging from other family members to doctors to friends. Start documenting any concerns you have witnessed or worried about. In all the years I have been working with families with individuals with Special Needs I have deeply respected the parents who have taken time to know their child: What works, what doesn’t, what tools are successful, etc the list goes on. As a parent do not fear away from being an advocate for your child… You need to because your child needs you to!

It is worthwhile in checking out the above links. They are easy and a simple read.

 

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Love is in the air with Saint Valentine’s Day just around the corner.  So I thought I would share a wonderful blog written by a loving mother who loves her son.  The blog, http://www.lovethatmax.com/ is a delightful blog that have won awards in the blogging sphere and this super mom definitely has an impressive list of writing experience behind her.  The slogan of this blog is ‘A Blog About Kids With Special Needs Who Kick Butt ‘… This blog is a voice of an advocate that will inspire!

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Is it okay to be an advocate for my child?’  Recently a mother who was struggling to get her child designated asked me this question.  ‘I don’t want to come across as too pushy.’  I answered, ‘It is essential for a parent to be an advocate and that it is the key ingredient to a child’s success.’  It comforts me as a teacher to know that parents want to go the extra mile for their child.  It is vital for their child’s learning potential and excellence.

I watched a video yesterday called ‘Extraordinary Measures’ and wow…  it just blew me away with the advocacy a father has for his children.  This is the synopsis of the movie:

A Portland couple have two children with Pompe disease, a genetic anomaly that kills before a child’s tenth birthday. The husband, John, who’s in advertising, contacts Robert Stonehill, a researcher who has a theory on an enzyme treatment. He has little money to pursue his research, and a thorny personality that drives away colleagues and funders. John and his wife Aileen raise money for to get Stonehill going, then John takes on the task full time, working with venture capitalists and then a rival team of researchers. Time is passing, Stonehill’s antics get in the way, and the profit motive may upend John’s hopes. Can the researchers succeed in time for the Crowley’s.

This is a father who gave up his job, his sleep, his money and his life to find a cure for his children.  Because of his advocacy other individuals with this disease can live longer lives.  This film let’s you go into the hearts and minds of a family struggling and wrestling with this disease.  You see the tears and hear the laughter.  Yet, the film highlights that not only do you need a passionate parent to raise the level of awareness but you need scientists that are dedicated to the science as well.  It seems that recently films have highlighted the ‘negative’ and ‘cruel’ world of the pharmaceutical companies (ie Constant Gardener).  But this film shows that these companies expand the lives of millions through their medicines.  So with Father’s Day upcoming, let’s be individuals (like this father) who advocates for the lives of all children.

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